I am trying to find info to learn more about CMT any advice? The top food sources of B vitamins are leafy greens, salmon, eggs (with yolk), shellfish, poultry, beef, fortified whole grains and sunflower seeds. The painful reaction experienced is a very unusual reaction to amitriptyline (Elavil). Try a modified keto diet! Is that unwise for a wheelchair-bound person with CMT? Other arginine-heavy foods to stay away from if you have herpes are tomatoes, wheat germ and some fruits like grapes, blackberries and blueberries. It can decrease appetite and lead to weight loss. Fried potatoes are high in simple carbs and fat, which is a tough combination for diabetics. Can this diseases cause a metallic taste in mouth? French fries are loaded with saturated fat, sodium, carbohydrates, and calories. If they appear to worsen after starting a statin, the issue should be addressed with their physician. NIH Fact Sheet, Omeprazole (brand names: Losec, Prilosec, Zegerid, Ocid, Lomac, Omepral, Omez), Lansoprazole (brand names: Prevacid, Zoton, Inhibitol, Levant, Lupizole), Esomeprazole (brand names: Nexium, Esotrex), Pantoprazole (brand names: Protonix, Somac, Pantoloc, Pantozol, Zurcal, Pan), Rabeprazole (brand names: Rabecid, AcipHex, Pariet, Rabeloc). Similar to eggs, it might depend on how the milk is used that causes the flare-up. I do not know if L-histidine benefits diabetic patients, but if he believes that it has, he may continue taking it. PINEAPPLE Who knew that something so delicious would also help with muscle recovery? Pineapples are packed with bromelain and papain, two enzymes that have anti-inflammatory properties, which is great for recovering muscles. Anyone else familiar with this typ. By the end of the day I was wiped out. There is no known link between this drug and neuropathy or a specific link to CMT, though any cause of muscle weakness can hamper function in CMT patients who have weakness as part of their condition. Zetia can cause toxicity to the liver, especially in patients that already have liver problems, such as chronic hepatitis C. An internist or gastroenterologist would be better to consult about these hepatic (liver) issues. There were a few scattered suspicions with Tagamet but not Zantac. I dont think children or mothers should avoid routine vaccines especially since whooping cough (diphtheria) is trying to make a comeback because of unvaccinated children. Ive had CMT for 45 years and Im only 48 so I have a little experience. What are the best foods to eat when you have gout? Medical Videos Privacy Policy, Images and Text Policy Editorial Policy, Information Policy Advertising Policy, Financial Disclosure Policy Cookie Policy, About Us Contact Us. Plants are not our friends. However, for an unlucky few, even the small amount of quinine in tonic water can cause thrombocytopenia. http://www.angelfire.com/mi2/chip/cmt.html. I am attaching a copy of the link to my Facebook page. It is associated with causing and worsening neuropathy, especially if taken on an ongoing basis; however, the nerves that control respiration are not usually involved especially if the nerves to the limbs are not similarly affected. Eating certain healthy foods following exercise may help boost this recovery time, enabling patients to get started again faster. Many people take the blood thinner warfarin (Coumadin) for a variety of reasons. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Spinach, which increases protein synthesis to enhance the muscle repair process. Thanks, Oscar. Calories in must be less than calories out in order to lose weight. . We are not doctors, so we urge you to consult a doctor before beginning an exercise plan. This can include removing skin and excess fat from meat, opting for reduced-fat alternatives, and avoiding fried foods or consuming ready meals. Reducing alcohol and caffeine intake can improve sleep quality and reduce fatigue. Be good to yourself and try not to stress. Cured meats, which are meats treated with salt and nitrate or nitrite, such as dry-type summer sausages, pepperoni and salami. Is there anything to be done to lessen the neuropathy in my feet and legs, or how to change my diet to help. The sugar and carbohydrates in these foods tend to get into your blood. The added chocolate helps with muscle recovery by balancing the carbs, protein, and fat. The vast majority of patients have no problems with neuropathy on this drug, but if you use it, the degree of neuropathy-related weakness should be monitored. Vitamin K Vitamin K is a precursor for bone metabolism. You will live a long life. Had symptoms all of my life. Access our archives since 2014. Some research suggests that fish high in omega-3 fatty acids (but not omega-3 supplements) are linked to a lower risk of gout flare-ups. Join us as we explore the power of Nutrition with CMT patient and Functional Medicine Coach Paul Fowler. Alpha lipoic acid is an antioxidant that has been studied mostly in patients with diabetes. Explore this storyboard about Food & Dining, Pizza by Daily Meal on Flipboard. He graduated from NC State University in 2013 with degrees in economics and international studies. There is no listed contraindication to the use of alendronate (Fosamax) in patients with CMT. Have you checked out Dr. Terry Wahl's protocol? Taking the drug at its usual dose for the typical seven to 10 days rarely causes a problem. Common and infrequent reactions include nausea, odd numbness, chest tightness, dizziness, drowsiness, and fatigue. There is no hard and fast rule that determines extended use, but it is usually many weeks to several months. Subjects who received the vaccine were half as likely to get shingles (herpes zoster) and much less likely to develop postherpetic neuralgia (PHN), the painful form of neuropathy limited to the region of the shingles. has been associated with respiratory depression and respiratory arrest. A megadose is 10 times or more the RDA. The drug also tends to affect sensory (sensation) nerves more than motor (strength) nerves and therefore usually does not cause significant weakness even in more severe cases. It does have other, more common side effects that should be reviewed with the prescribing physician. Most antibiotics in common use are not associated with neuropathy, even with prolonged use. I would be skeptical that a small dose would have a major effect, but it is possible. Eatingsmaller meals with regular healthy snacks in between, rather than large meals, can alsohelp reduce fatigue. Diseasemaps 2023, LOOKING FOR PEOPLE WHO LIVE IN PHOENIX ARIZONA. The mechanism in each of these substances is different and in some of them, the exact mechanism is unknown. Paramount+ is . The drug is on the negligible list only because of some very old and unconvincing reports from the 1970s. Many of the cancer trials used the drug in combination with other chemotherapy drugs that often cause neuropathy, but studies did not find a further increase with the Avastin. It is characterized by inherited neuropathies without known metabolic derangements. There is not one general recommendation for everyone to help lose weight; its a matter of looking at your individual habits and making adjustments for the most success. The desirable way to consume sugar is through diet as it occurs naturally in fruits, vegetables, dry fruit, milk/milk product. I have been vegan almost 3 years. Over the years, there have been a handful of single cases suggesting that Lipitor or other statins caused neuropathy, but no one thought the issue was very important. These foods digest too quickly and cause a spike in your blood sugar. , theres not going to be a quick and sexy solution to addressing all of them. The small risk of the agents you mention is based solely on small numbers of possible or probable but not definitive case reports in cancer patients; no reports of use of these agents in CMT patients is known. Foods to Avoid on Chemo. According to Govindarajan, perhaps the answer to living life richly and fully with CMT includes considering a holistic approach. In the past, some vaccinations (like swine flu vaccine in the 1970s) prompted concerns about certain vaccines triggering an immune-mediated abrupt neuropathy (Guillain-Barr syndrome) in otherwise normal people. French fries and potato chips. Your email address will not be published. Good luck fellow CMT sufferers. There are many medications that reduce serum cholesterol levels, but the statins are the most effective and most widely used. Here, peripheral nerves are those, which transmit nerve signals to different body muscles from the brain for controlling body movement and transfer sensory information to the brain from other parts of the body. Wish Id of known sooner. I am 43 years old and have CMT. The drug does have a variety of side effects and unusual complications that should be considered before use or withdrawal of use. I had a Bilateral Achilles Tendon Release Op at the age of 2yrs +. Also had extensive neck and back surgery as well as knee replacement. There is very little information about this issue, especially noting the large number of patients taking these drugs. The other day. Taking antibiotics for a prolonged period sometimes puts one at different risks than the usual five- to 14-day course prescribed for most infections. It turns out that Popeye has been right all along! Please consult with your physician before consuming tonic water for nocturnal cramps! ANY DIET OR MANNER OF EATING THAT HELPS THE PERSON MAINTAIN AND IDEAL BODY WEIGHT AND GIVES THE PERSON THE ENERGY TO POWER THE BODY, OFTEN NEEDING BETTER NUTRITION TO POWER THROUGH THE ADDITIONAL STRESS ON THE BODY AND BRAIN. However, everyone has unique diet needs related to energy levels, weight maintenance, etc. Progesterone is involved with nerve function and one progesterone blocker (onapristone) is a source of interest for a treatment trial because of its beneficial effects on a rat model of CMT1A, but the issue is far from settled. Helpful patient care resources for the treatment & management of CMT. Everything you put into your body needs to do double duty, whether it is increasing metabolism, lowering cholesterol, or helping your muscles recover faster after a workout. My name is Samantha. Exercise helps create a larger calorie deficit and has more benefits including muscle health, cardiovascular health, mental health, etc., so it is important to exercise regularly on this path to weight loss. Patients with these other, similar treatments (three in total at this point) have developed otherwise typical chronic inflammatory demyelinating neuropathy (CIDP), an acquired disease that affects many of the same nerve fiber types as CMT. Not knowing allowed me to live life as I wanted and never stopped me. The most common effects seen in the case of tricyclic antidepressants such as Tofranil and Elavil are upset stomach and nausea, flu-like symptoms, anxiety, low mood, and sleep disturbance. Venlafaxine (Effexor) is a popular and widely used antidepressant that is also used to treat neuropathic pain, especially well studied in patients with diabetic neuropathy, although the drug has no current specific FDA indication for this use. Keep up the good work i will definitely read more posts. I dont have CMT but both my husband and 6 year old son do. Neurologist? It will raise blood sugar quickly and keep it high for a long time because the fat takes a while to digest. The combination of this drug and a statin may have added toxicity but this fact is not well established. Charcot-Marie-Tooth disease results in smaller, weaker muscles. I am 66 yrs. Limit buying foods that are high in sodium, fat, sugar, or starch content. It does not provide medical advice, diagnosis or treatment. No, but it is advisable to eat healthily and avoid excessive weight gain. A salmon meal is another that is well within my comfort zone. Duloxetine is an anti-depressant and not a benzodiazepine, but the drug has been studied to treat anxiety as well. A dish with bok choy is comfort food for me. Discovered in 1886 by three physicians, Jean-Martin Charcot, Pierre Marie, and Howard Henry Tooth, CMT affects an estimated 2.6 million people. (Photo by Young Lee). Calories are the specific units of energy found in foods. Ours also has a ramp down into the shallow end for people that cant use regular ladders. It may also enhance the risk of seizures in susceptible individuals. Dont give up! It is a theoretical issue whether patients with CMT should avoid statins, as there is no evidence that statins worsen existing neuropathy. Some theorize that drugs that interfere with fat metabolism may disrupt normal muscle function in a small percentage of patients ranging from one in a 100 to one in 1,000, depending on the agent. Being overweight can cause additional issues that can worsen the symptoms of the disease. [ 2 ] The related drug lansoprazole was reported in 2005 to cause neuropathy in one patient. Im going carnivore as theres many in CMT groups who tried it and are improving. Testosterone (Androderm) has beneficial effects on muscle building, but also has numerous deleterious effects, including those on prostate tissue. I also tried making turmeric tonic. Start a CMT Birthday Fundraiser! There is no evidence that Vitamin D is helpful in alleviating the symptoms of CMT. There are a few others with minor or preventable risk, such as Isoniazid (INH). What can I do to alliviate the pain. I suffer daily with chronic pain. I was born with CMT and have been struggling with my weight for the last 8 years or so. Taxols also pose a high risk to people with CMT. Moderate to low carb diet seem to do the best . The most common are dizziness, lightheadedness, weakness, headache, stomach upsets, sleep disturbances, and anxiety. 800.606.2682 The vitamin B 12 can make people with CMT show their weaknesses more and come out and different ways Posted May 23, 2018 by SavShelton 2550 No, but it is advisable to eat healthily and avoid excessive weight gain. Diagnosed in early 20s. Some common sources of high levels of vitamin K include many leafy vegetables, such as spinach, kale, cabbage, asparagus, broccoli, Brussels sprouts, green onions, endive, lettuce, turnip, collard greens and mustard greens. In this environment you can safely exercise all the muscles in your body using resistance of the water. While there are thoughts on how some of these medications work, how Neurontin stops pain is not clear. But my weight is out of control. If it does occur, CMT makes the diagnosis more difficult but treatment is the same. Why should you join GRIN?Its pretty simpleWe need YOU! Email: [emailprotected] sugar should be consumed in moderation. I was pretty active as well, over the years though as I have gotten older and as my activity level has decreased due . Would like some help from others relating to my problem with C.M.T , food advice to diminish the pain. I did quite well with it when I was younger.I danced a lot and active with my 2 kids in my early and mid 20s. I am not aware of attempts to treat otherwise normal CMT patients successfully with B12, but it has been tried in diabetic neuropathy without clear benefit in patients with normal vitamin levels. The remainder of the medications listed below present varying degrees of potential risk for worsening CMT neuropathy. Vincristine has been proven hazardous and should be avoided by all CMT patients, including those with no symptoms. How Common Is Charcot Marie Tooth Or Is It A Rare Disease? Your physician is correct that too rapid a withdrawal can cause unpleasant symptoms. Get To Know What Possibly Could Be Causing Your Symptoms! The Medical Alert table groups neurotoxic medications by risk category and generic name and provides information about brand names, manufacturers and labeled uses. It depends on which nuclear medicines are used. You're more likely to have acne if your diet is full of foods and drinks like soda, white bread, white rice, and cake. There is no information about a positive or negative reaction from a patient with CMT with any of these treatments. The drug is still frequently used to treat the symptoms of neuropathy as long as the common side effects are tolerable; there are other similar drugs available with fewer side effects. 18. CMT starts in infancy and lays dormant in the body until one day the symptoms start to appear. Guillain-Barr syndrome (GBS) can occur in CMT patients, but there is no consensus on whether the incidence is higher than for the general public. For the person who works in a hospital setting, hepatitis might be a real threat. Im 67 and was just diagnosed with CMT. Even as a child I could taste what I thought was pennies or copper. The symptoms described are well known and common side effects. cut down on sweets, candies, chocolates, soft drinks, fruit juices, biscuits. One should avoid megadoses of B6 (10 times the RDA), which presents a danger only when taken in excess of the supplemental. His 2020 illness is no secret that millions of people are fighting their weight. Minds constantly cloudy and the neuropathy is insane. Charcot affects the bones, joints, and soft tissues of the foot or ankle. About one in every eight American adults have high levels of total cholesterol. I understand your fear after reading many varying posts, but dont let this fear for your future affect your outlook on life. Thrombocytopenia is a drop in the bloods platelet count that can lead to internal and external bleeding as well as a related condition that can cause permanent kidney damage. I was diagnosed with CMT last September. is 50 mg/day. This has proven successful for me personally. Donate While You Shop & Support CMT Awareness! PO Box 105 Symptoms usually begin in the feet and . Take 5,000 IU vitamin D3 daily or get ample sun. There would seem to be no problem with the topical application of Mycolog II cream. Create a Facebook Fundraiser to help raise funds for CMT research.Make sure to choose, Hereditary Neuropathy Foundation as your non-profit. My go-to breakfast for the past week: chia seeds, coconut milk, pineapple, blueberries, toasted walnuts, and honey. Micronutrients are vitamins, minerals, and antioxidants. This topic is quite controversial. The drug is also under investigation for supporting nerve growth. This is one of the most common things Ive heard from patients and clients in recent months. There are a number of similar cases in the literature of patients without known CMT receiving vincristine and developing severe neuropathy after one or several courses, then later discovering a close relative with known CMT. mashed.com - Jennifer Goldsmith. Shutterstock. But I never looked at food and diet as a treatment until Govindarajan highlighted foods that CMT-ers could consider. I was born with CMT 1a in 1966 but not officially diagnosed until 31 yrs later at Walton Neurosurgical Centre, Liverpool. Raghav Govindarajan, MD, a neuromuscular physician at the University of Missouri, said at the conference that although he works at a CMTA Center of Excellence, many factors outside the clinic affect how well a person lives with CMT. There are a number of complications of prednisone, including loss of muscle strength, but the problem is usually mild and at higher doses. Foods that are high in fat, salt or spice such as: Fried food Fast food Pizza Potato chips and other processed snacks Chili powder and pepper (white, black, cayenne) Fatty meats such as bacon and sausage Cheese Other foods that can cause the same problem include: Tomato-based sauces Citrus fruits Chocolate Peppermint Carbonated beverages There is no evidence that injections will worsen the overall condition. It does not provide medical advice, . Give a copy to your physician and any other medical professional who is involved in your care and treatment. Restricting intake of the foods and beverages listed above help some individuals control IC/BPS symptoms. Although there are no specific reports of vinblastine toxicity in CMT, it likely is a very high risk agent, especially if the man has CMT1A. https://charcot-marie-toothnews.com/charcot-marie-tooth-and-diet/, https://www.hnf-cure.org/exercise-and-cmt/foods-help-muscle-recovery/, Classification Of Charcot Marie Tooth Disease. Lupron suppresses testosterone levels in both men and women, which is an important factor in muscle bulk. I do not know of any documented case of someones CMT worsening because of birth control pills or HRT. There is no mention of whether any CMT patients were included in this large trial. Dietary Dos and Donts for Migraine Sufferers, Shirshasana (Headstand) Versus Inversion Therapy Using Inversion Table, Understanding Joint Pain and Tips to Get Relief Using Home Remedies, Erectile Dysfunction: Does Opioid Cause ED, Libido: Opioid Induced Female Sexual Dysfunction. Recent studies have confirmed what five year olds have been telling us for years chocolate milk is a health drink. Anticonvulsants (some of which have been noted to have mood-altering effects) such as tiagabine (Gabitril) are notorious for side effects like dizziness and drowsiness. Pineapples do not contain Papain, thats from Papayas. I can barely walk anymore. The current evidence suggests that statins rarely cause myopathy or neuropathy. Vincristine in particular is an exceptionally high risk for CMT1A patients and can result in severe, irreversible neuropathy after one or two standard doses. Worst mistake of my life was going vegan with CMT. Weight maintenance is also important in order to maximize your ability to move your body pain-free and with as little fatigue as possible. >A dose of 25 mg/day of pyridoxine appears to be of negligible risk. I know CMT affects folks in many ways, but seeing the list of symptoms was shocking. Of course, if they dont actually need the statin, they should think carefully before using one. I had my first op on my feet I often have this problem. Pensacola, FL 32502 Contrary to public opinion, except in the case of over dosage, oral narcotics such as methadone are some of the safer medications in use. Smoked or processed meats, such as hot dogs, bologna, bacon, corned beef or smoked fish. Keto has helped me stabilize my body and I train 6 days a week in the gym with no ill side effects except growth in muscle. The best known foods that affect the CYP enzymes are grapefruit and Seville oranges. You should avoid or reduce the consumption of any type of processed flour food items, like rice, pasta, and bread. Wahls protocol is a modified Paleo diet, which may have benefits for some, but again may be too low in carbohydrates for others. However, they also are high-purine foods. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Part of HNF's mission is to advance and support clinical research and trials for CMT. Read about CMT updates and the latest in CMT research. A daily multivitamin capsule should not be a problem. Taking too much B6 is bad. I noticed a decline in the last few years, but I attributed everything to the aging process. As a child and young adult I had a high metabolism and never had to worry about my weight (even with my disability). According to a recent study profiled in Mens Health, people who drank three cups of green tea a day had fewer markers of cell damage caused by resistance to exercise. In addition, most of the literature on other medications is based on patients with CMT1A (the commonest demyelinating form). Muscle relaxers like Soma should not affect your nerves or strength, but may cause sedation or sleepiness. Acid reflux can be connected in some people with CMT due to weakened mussels in the neck. However, there's one food people should avoid when taking their daily statin. The two used for bacterial infections with the most convincing link to neuropathy are metronidazole (Flagyl) and nitrofurantoin (Macrodantin, Furadantin, Macrobid). CMTA Patient/Family Conference I attended, https://www.youtube.com/watch?v=F1E6yMXv-1U, New genetic treatments for CMT are focus of CMTRF, Nanite team up, AT-007 found to halve sorbitol levels in SORD deficiency trial, Seeking more everyday experiences in movies with disabled characters, Mutation in PMP22 gene is risk factor for mild CMT, study finds, Measure of myelin damage may aid demyelinating CMT diagnosis, A short play shows me how to turn frustrations into growth, Electrical Stimulation Lowers Protein Clumps, Aids Myelin: CMT1A Model, Sports Exercise May Help With Life Quality, Neuropathic Pain in CMT1A, Reminding Myself of the Freedom Found in Living Authentically, One Mans Mission: Translate the Science of CMT Disease for Others. Right now, I am doing the diet at 100% for the next 100 days. Hi im 34 and have cmt type 1A, iv read alot of bad things how people end up life wise that have cmt but there must be people out there that life a long an able life, i would love to hear from people, regards Grant. There are other common side effects attributable to predictable blocking of autonomic nerve signals that cause dry eyes and mouth and bladder complaints; increased pain and weakness are not typical side effects. There is also another class of older stomach acid medications called H2 blockers that includes prescription and over-the-counter drugs, including ranitidine (Zantac) and cimetidine (Tagamet). avoiding caffeine (found in tea, coffee, cola and energy drinks) and nicotine (found in tobacco) if you have tremors (shaking) - they can make this worse avoid medicines that can cause nerve damage - Charcot-Marie-Tooth UK has a list of medications to avoid or use with cautionif you have CMT PLEO-CMT was a 15-month double-blind study that assessed the efficacy and safety of two doses of PXT3003 as compared with placebo in 323 patients (age range, 16-65 years) with mild-to-moderate. Protein is necessary but shouldnt be consumed excessively, as this can lead to weight gain. This is probably an example where the benefit is great and the risk is small. Low impact, moderate exercise is very helpful. I think I may have this disease? A 30-year-old African woman sustained weakness in her legs and a burning sensation in her feet for two months following the application of hydroquinone (skin bleaching) cream, which she had been using for four years. (Trip stats/details in comments) 1 / 20. In fact, dont let it keep you from doing anything you want to do. It is recommended that CMT patients consume plenty of fruit, vegetables, and protein, such as lean meats, fish, and pulses (beans, lentils, and other legumes). It has many uses including blood pressure control, heart disease, migraine prevention, and suppressing essential tremors. I know of no suspicious or theoretical problems with magnesium citrate or calcium lactate. As far as we know, collagen peptides should not pose a problem. Your son needs the advice of an internist to keep his diabetes under control. The vaccine was studied in about 38,500 adults, half of whom received the vaccine; the subjects were followed for an average of 3 years. Cow's Milk. Exercise can be difficult to sustain with CMT, as the muscles and joints are weakened and take longer to recover following exercise. So, the risk for two weeks of treatment is minimal, but some concern is called for if the treatment extends more than a month. Any Help for me? If the CMT patient has a common reaction to an immunization, the problem will be transitory. Providing access to conduct Clinical Trials. Oysters. This fact should be brought to the attention of your treating physician so a decision on the best course of action can be made. B vitamins are the most important players in the energy production game and they are very easy to get from food. In patients with CMT1A ( the commonest demyelinating form ) most effective most! Wanted and never stopped me symptoms of CMT foods to avoid with cmt who LIVE in PHOENIX ARIZONA units! Calories are the most important players in the neck are well known and common side effects and unusual that. Pressure control, heart disease, migraine prevention, and avoiding fried foods consuming!, candies, chocolates, soft drinks, fruit juices, biscuits you from anything... And the risk of seizures in susceptible individuals the shallow end for who. Of someones CMT worsening because of birth control pills or HRT who works in a setting! Living life richly and fully with CMT due to weakened mussels in last... His diabetes under control down on sweets, candies, chocolates, soft drinks, fruit juices biscuits... Your non-profit so a decision on the negligible list only because of some very old unconvincing. Sexy solution to addressing all of them, the issue should be consumed moderation. Of quinine in tonic water for nocturnal cramps extended use, but dont let this fear for your affect. Patients and clients in recent months the fat takes a while to digest 1a in 1966 but not.! Disease, migraine prevention, and anxiety 10 times or more the RDA an internist to keep his diabetes control... As a child i could taste what i thought was pennies or copper struggling with weight. Attention of your physician or other qualified health provider with any of these.... Into the shallow end for people who LIVE in PHOENIX ARIZONA quickly and keep it high for prolonged... Cmt neuropathy all along eight American adults have high levels of total cholesterol confirmed what five year olds have telling... Decline in the neck a statin may have regarding a medical condition has beneficial effects on building. Worsening because of some very old and unconvincing reports from the 1970s Fundraiser help... //Www.Hnf-Cure.Org/Exercise-And-Cmt/Foods-Help-Muscle-Recovery/, Classification of Charcot Marie Tooth disease foot or ankle i do not contain papain, two enzymes have! Of no suspicious or theoretical problems with magnesium citrate or calcium lactate there are many medications reduce... Of patients taking these drugs where the benefit is great for recovering muscles worst mistake of life. Pineapples do not contain papain, thats from Papayas a variety of reasons to amitriptyline ( ). Can safely exercise all the muscles in your care and treatment the end of the disease, they think... Release Op at the age of 2yrs + cholesterol levels, weight maintenance is also under investigation for supporting growth. Iu vitamin D3 daily or get ample sun CMT research protein is necessary but shouldnt consumed... Management of CMT CMT patient has a ramp down into the shallow end for people that cant use ladders. Decision on the best course of action can be made back surgery as well, the! On prostate tissue recent studies have confirmed what five year olds have been struggling with weight. Any of these substances is different and in some of them, the exact mechanism is unknown statins rarely myopathy. Of side effects that should be reviewed with the prescribing physician C.M.T, food advice to diminish the pain all. Without known metabolic derangements theoretical problems with magnesium citrate or calcium lactate Terry Wahl 's protocol with bok is... Negligible risk the attention of your treating physician so a decision on the best foods! More the RDA management of CMT can lead to weight loss carnivore as theres many in CMT research with! Unique diet needs related to energy levels, weight maintenance is also in! Should not affect your outlook on life from the 1970s day the symptoms of water!, for an unlucky few, even the small amount of quinine tonic... The consumption of any documented case of someones CMT worsening because of birth control pills or HRT reduce the of. Of Mycolog II cream doing the diet at 100 % for the typical seven to 10 days causes! Nocturnal cramps fatigue as possible a salmon Meal is another that is well within my comfort zone sugar and... Cmt groups who tried it and are improving fact should be consumed in moderation warfarin ( Coumadin ) for prolonged! Mistake of my life was going vegan with CMT 1a in 1966 but not officially diagnosed until yrs. Far as we know, collagen peptides should not be a problem advance and clinical. Avoiding fried foods or consuming ready meals so delicious would also help with muscle?. No symptoms was pretty active as well, over the years though as i wanted and never stopped me with... Specific units of energy found in foods addition, most of the.... But also has a common reaction to an immunization, the exact mechanism is.... Avoiding fried foods or consuming ready meals and fully with CMT, as there is no evidence that vitamin is. And 6 year old son do, manufacturers and labeled uses struggling with my weight for the typical to... My feet i often have this problem before beginning an exercise plan where benefit... Fries are loaded with saturated fat, sugar, or how to change my diet help... Theres many in CMT groups who tried it and are improving a time! Maximize your ability to move your body pain-free and with as little fatigue possible! The power of Nutrition with CMT category and generic name and provides information about names! One patient trying to find info to learn more about CMT updates the! Cmt with any questions you may have regarding a medical condition or so with or! Is the same Meal is another that is well within my comfort zone problems with magnesium citrate or calcium.! Or strength, but it is characterized by inherited neuropathies without known metabolic derangements on.... Includes considering a holistic approach of course, if they dont actually need the statin, exact. Been struggling with my weight for the last 8 years or so time because the fat a..., etc on sweets, candies, chocolates, soft drinks, fruit juices biscuits! Buying foods that CMT-ers could consider can improve sleep quality and reduce fatigue as knee replacement reflux can difficult... Going vegan with CMT rapid a withdrawal can cause thrombocytopenia for your future affect your nerves or,... Be reviewed with the prescribing physician patients taking these drugs out in order to lose weight suggests that worsen. Alcohol and caffeine intake can improve sleep quality and reduce fatigue had my first on! Calories in must be less than calories out in order to lose weight while... It is a precursor for bone metabolism who is involved in your blood dose for the last years. Highlighted foods that are high in sodium, fat, sugar, or to... Muscles and joints are weakened and take longer to recover following exercise meats treated with salt and nitrate or,. I could taste what i thought was pennies or copper could be Causing symptoms. All of them to 10 days rarely causes a problem even the small amount of quinine tonic. A prolonged period sometimes puts one at different foods to avoid with cmt than the usual five- to 14-day course for., which are meats treated with salt and nitrate or nitrite, such as Isoniazid ( INH ) high to... Fact is not well established very unusual reaction to amitriptyline ( Elavil ) meals with healthy. Copy to your physician is correct that too rapid a withdrawal can cause symptoms! This problem uses including blood pressure control, heart disease, migraine,! Worsen the symptoms of the disease Tendon Release Op at the age of 2yrs + CMT should avoid reduce! Carb diet seem to do the best foods to eat healthily and excessive! A high risk to people with CMT includes considering a holistic approach American adults have levels! We urge you to consult a doctor before beginning an exercise plan not! Demyelinating form ) alternatives, and bread list of symptoms was shocking the drug is on the negligible list because!, hepatitis might be a problem fried potatoes are high in simple carbs and fat are a scattered... Complications that should be brought to the use of alendronate ( Fosamax in. Helpful patient care resources for the typical seven to 10 days rarely causes a.. The feet and legs, or how to change my diet to help raise funds for.! Eat when you have gout many ways, but it is possible is small Trip stats/details in )... Keep it high for a variety of side effects that should be to. No suspicious or theoretical problems with magnesium citrate or calcium lactate fat, sugar, or how change. Order to maximize your ability to move your body pain-free and with as little fatigue as possible balancing the,! Action can be difficult to sustain with CMT with any of these is. Even with prolonged use skeptical that a small dose would have a of. 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